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Jun
16
Tic, tic, tic
Filed Under it's all about me, meme | 7 Comments
I’ve had a tough day.
It began with an email from Madeline’s teacher. I love this teacher. She has dealt with Madeline’s tics and ADHD with so much understanding and patience. She is big on behavior modification and Madeline has responded well. We email often to keep each other abreast of what is going on with Madeline. Her email today informed me that Madeline was having a rough day and complaining about her eyes bothering her. She had glasses prescribed a few months ago but they aggravated her tics, causing her to frequently move her ears and rub the glasses on her nose until the skin became red and sore. We traded her glasses in for contacts and she did well with them the first few weeks but now she’s complaining of her eyes hurting and I have noticed that her blinking tic has increased considerably over the last week. She is so hypersensitive.
I wasn’t surprised that she was having a bad day. I noticed a change in her behavior over the weekend. She was more impulsive than usual and her tics were greatly increased. I know that it’s time to consider medicating her. It’s been a year since we tried Strattera and that is the only drug we have tried. I have a friend whose son has similar issues as Madeline and is doing very well on Tenex and Focalin. She’s also is very happy with his neurologist so I have been mulling around the idea of taking Madeline to him. Her teacher’s email was confirmation that Madeline needs to be seen. Unfortunately the receptionist of the new doc was extremely rude and tells me that the next available appointment would be the end of October. This was after I was on hold for ten minutes.
“Are you kidding me?” was my response.
Then silence.
“Okay then. Thanks anyway” and I hung up.
I was shocked. My friend is shocked. Her son was seen within the week of her calling. Obviously I caught the receptionist from hell on the wrong day. Seriously, what pediatric neurologist can’t see a child for six months?
I called the neurologist that treats Madeline and they are getting her in tomorrow. Easy peezy, lemon squeezy and the receptionist was pleasant!
When I picked the kids up from school I could see that my usually happy child was not happy. She broke down as soon as we pulled away and my heart bled as I watched big, fat alligator tears roll down her beautiful face.
I hate that she is going through this.
I hate that I can’t “fix” it.
I hate that kids make fun of her.
All I could offer her was my shoulder to cry on and a doctor’s appointment. She is definitely her mother’s daughter. We are both very emotional and cry when under great stress but we are also strong and will seek answers and solutions. After our pity party Madeline asked if she could give her class a talk about her tics so they could understand her better.
That’s my girl.
She even started her research on her own tonight. I walked in on her watching this HBO piece on kids with Tourettes. We also have a neighbor kid that has Tourettes so I suggested she should talk to him.
We’ll get through this.
Now I must sleep.
I hope.
